About Me

From 3/18/11

I’m a 27 year old wife to the most amazing husband in the world (Josh), mother to the most unbelievably beautiful, talented and smart baby boy (Jayden) in the world, daughter to the most giving and patient parents and in-laws the world could give, and friend to the most loving and loyal friends a person could know.

I am a student, thinker, cynic and believer all wrapped into one.   Most days, I am a walking contradiction.

We are expecting our second son (who has yet to be named) on May 21st but we discovered that he has Down syndrome.  This is my story.  I am learning about Down syndrome from the very beginning because I know very little about it.

I wanted to share this journey with anyone who will listen and anyone who may benefit from my experiences.

4 Responses to About Me

  1. Hi, Amanda, I just learned about your blog from a woman opening a yoga studio in Olde Town Arvada. I wanted to reach out to you and share some local resources that will help you advocate for your son. Specifically, I really encourage you to attend our Mobilizing Families training this fall. There’s information on our web site. Please feel free to contact me at your convenience.

  2. Amanda says:

    Oh Wow! Thank you!!

  3. Ashby Daniels says:

    Hi, Amanda! I just Googled “Down Syndrome Broviac” and your blog was the first link. As I began to read, I thought you and I are the same person! I know exactly what you went through in the struggle to bring Levi home. My daughter was born with Down Syndrome and feeding difficulties. She was doing very well until a viral infection – the common cold! – shut down her digestive system. We are currently back in the hospital (today starts week four) and the doctors will be placing a Broviac next week as she is not tolerating feeds at all. It’s easy to feel alone throughout these journeys, but I’m glad to know I’m not. And you’re not either. Keep up the good work at home! I’ll be pulling for Levi!

    • Amanda says:

      Hey Ashby! I’m so sorry you guys are back in the hospital. How old is your daughter? What is her name? I’ll be praying for her. Levi has been home for a while now and is doing incredibly well. It’s amazing. I don’t think I worried a lot about the future when we were in the hospital, everything was just so moment to moment. But if you do worry about it, I hope Levi doing so incredibly well serves as encouragement to you. Things do get better. Sunnier days do come.

      I remember praying a lot that I was so tired of saying, “things could be worse” and “I have so much to be grateful for”. I was so tired of looking for the silver lining in the clouds. I just wanted one truly sunny day and for a while I thought I would never see the sun again. But sometimes clouds are very slow moving, but they ARE moving and sunny days do come back.

      I remember going out to my car to sit and sob or sometimes scream my heart out. It helped. So did writing a blog. When I started the blog I had no idea what it would become, but when we were going through the hardest part, it was a saving grace. People all over the world were messaging me and emailing me and telling me they were praying for Levi. Someone even said they put his name on a piece of paper and stuck it in a crack in the wailing wall in Israel. I don’t think I’ll ever forget that.

      You are not alone. My thoughts and prayers are with you. Let me know how you guys are doing whenever you have the time or the strength.

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