Author Archives: Amanda

11:10pm

Tweet Things are not going well. What is the one thing in the world that can keep Levi from sleep? Indigestion. Guess what he’s got? He keeps squirming, kicking, arching his back and moaning; disconnecting wires every time. We’ve been … Continue reading

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9:16 pm

Tweet Well here’s how things are going so far: He’s all plugged in, exhausted and clearly ready to sleep. As I type this he is asleep but if he tries to move he gets all tangled and angry and things … Continue reading

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Sleep Study Tonight

Tweet Tonight when you’re putting your kiddos to bed, or getting yourself ready for sleep, please say a quick prayer for Levi.  Tonight he is having a sleep study done.  They will hook him up to all sorts of wires … Continue reading

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Denver Comic Con

Tweet So we finally went to our first Con! It was amazing and such a blast.  I think next year I’d like to do one day with the kids and one day without.  But it was really fun to see … Continue reading

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Education for ALL Disabilities

Tweet The first weekend in May, Josh and I went to the Parents Encouraging Parents (or PEP) conference.  I cannot recommend it enough!  Seriously.  If you know anyone in Colorado who has a child with ANY disability, or ANY educator … Continue reading

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Low Sensory Morning at The Children’s Museum

Tweet So The Children’s Museum in Denver, CO is awesome. One of the awesomest places ever, to be exact. But sometimes kids with Down syndrome or other disabilities can be overwhelmed by all the noise and excitement that comes with … Continue reading

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Happy World Down Syndrome Day!

Tweet So I started this post on 3/21, World Down Syndrome Day.  It seemed like an appropriate day to get reacquainted with writing my blog.  It’s been too long.  But in usual Amanda tradition, I’m late. Haha! Anyway, 3/21 is World Down … Continue reading

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Step Up!

Tweet Levi had been in the hospital for three months.  Every day of his life since he was born.  He had never felt the sun kiss his skin.  He had never felt fresh air in his lungs.  His eyes had … Continue reading

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When God Promises

Tweet When Levi was going through all of those health struggles the first few months, I knew people in places all over the world were praying for him or sending good thoughts and deep wishes. It was such a shining … Continue reading

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The Typical Child

Tweet Levi’s progress with his therapists gets evaluated every six months. A couple of weeks ago his speech and occupational therapists came and asked me a ton of questions. “Can he do this?” & “Can he say that?” kind of … Continue reading

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