So I started this post on 3/21, World Down Syndrome Day. It seemed like an appropriate day to get reacquainted with writing my blog. It’s been too long. But in usual Amanda tradition, I’m late. Haha!
Anyway, 3/21 is World Down Syndrome Day! We celebrate on 3/21 because Down Syndrome is caused by a third copy of the 21st chromosome.
The reason why we celebrate people with Down syndrome is, well, because they’re awesome. But also because sometimes it can seem like the world is against them. With more and more articles being written with titles like “Down Syndrome May Soon Be Extinct”, it’s more imperative than ever that we show the world how amazing people with Down syndrome are. Some medical journal articles argue for mandatory testing and some articles
insinuate flat out say that if mothers knew earlier into their pregnancies that they were expecting a baby with Down syndrome, they would all abort. One medical ethics paper (irony) even said that the negatives of having a baby with Down syndrome outweigh the posititve, which is a flat out lie and an ignorant bias. Clearly the author didn’t even ask families what they think. MSNBC reported that,
“Among 2,044 parents or guardians surveyed, 79 percent reported their outlook on life was more positive because of their child with Down syndrome…Skotko also found that among siblings ages 12 and older, 97 percent expressed feelings of pride about their brother or sister with Down syndrome and 88 percent were convinced they were better people because of their sibling with Down syndrome. A third study evaluating how adults with Down syndrome felt about themselves reports 99 percent responded they were happy with their lives, 97 percent liked who they are, and 96 percent liked how they looked”.
At the same time though, more and more stories are coming out about the amazing things people with Down syndrome are accomplishing when given the chance. Everything from owning a restaurant, to climbing to the Mount Everest base camp, to learning German to star in a film, all things I certainly couldn’t do.
The point is that Down syndrome does not need to go extinct anymore than a hair color or skin color needs to be forced into extinction. After so many decades of people with Down syndrome being grossly undervalued, neglected and even hated, it is time to show the world what fantastic and amazing gifts they really are. And what better way to do that than a World Down Syndrome Day?
So, back to the blog. It’s been such a long time I thought I’d just make a quick video montage of pictures to get us all caught up. It’s about 4 min long and put to one of the best songs ever =).
Levi is walking!!
And here is the video to summarize quite a few months in a little over 4 min. I have been contacted lately by a few people who are, right now in the middle of something similar to what we went through. I hope this video shows you that sunnier days are coming.