So the latest with Levi is that the surgeons are still 50/50 that they even got the problem.  If not, they have to wait at LEAST two weeks before they can do a scope.  They have to put air into the intestine so if the stiches aren’t completely healed, they could tear.

If however he does seem to be healing right, we will do what we’ve done for the last two surgeries which is wait until 6-7 days after surgery to begin feeds again.

For the last two surgeries he was off the ventilator the next day.  For some reason this time he is having a really hard time and they can’t seem to get him breathing on his own.  They are going slow and hoping to extubate him tomorrow.

He keeps pulling the tube out on his own.  He is much bigger and stronger than they are used to dealing with in the NICU.

His heart rate and oxygen levels keep dropping too which he has never really struggled with before.

He’s just having a much more difficult time recovering this time.

I still remain hopeful and I can feel the prayers of many.  There is an unexplainable peace in my heart right now.  Yesterday we got rear ended and even though my neck hurts I’m emotionally fine.  If that had happened two weeks ago, I would have lost it thinking, “ANOTHER THING?!” but instead I feel calm and at peace with life as it happens.

Today’s message at church was about staying in the Word of God while we run the race of life (especially relatable since I’ve started running again).  There are many many times on this journey with Levi when I have wondered if we will ever see the finish line.  But the time I spent in scripture during his last surgery has renewed me in a way I can’t explain and I realized how much I’ve been missing out on by not being consistent in reading those words.

I feel like I see many reasons to lose hope, but I’ve done that and it didn’t bring me any comfort or fix any problems.  I am making a choice to stay positive and patient and to truly believe that God is with us, with Levi and He is able to do more with this life than we could ever imagine.

At this point persistence is the name of the game.  I have to keep reading the Word, I have to keep running (literally and figuratively), I have to keep hoping for his healing to come soon.  He has to keep fighting and we all have to keep praying.


They have Levi practically mummified so he can't pull out his tubes when they're not looking


Jayden and I went to the park again and I just happen to catch this adorable moment

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6 Responses to Persistence

  1. Susan says:

    Yes, just keep the word before you. read the word to Levi. He is the HEALED!

  2. Andrea says:

    Your boys are both so adorable. 🙂

  3. Sandie says:

    So thankful you are experiencing His peace that defies all understanding! That’s where it’s at–His Word. Still praying…

  4. Ashley says:

    You are such an inspiration. Thank you for the reminder to stay in the heart of God.:)

  5. Summer Todd says:

    Thank you sis. This encouraged me. Ive been struggling to stay positive in everything that ive been going through lately. I love you sooo much.

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