You can’t see it perfectly but they had to put another IV in his head in case he needed blood during surgery even though he still has the broviac in his carotid artery for nutrients.

So the Dr. didn’t seem hopeful, but I am.

She said she searched the entire intestine and only found two areas that were kind of swollen on the outside.  One was at the sight of the last surgery that removed the dead part of intestine (you can read about that surgery here).

She made a small incision in both swollen areas and looked inside.  The inside looked “pristine” and healthy.  She didn’t think it’s likely that is where blood (especially THAT much blood) could have come from.  But it was the only area that looked even slightly abnormal and since she had made incisions on either side of it, she went ahead and removed it, hoping that she has removed the problem.  She removed 9cm.  On his last surgery they removed 12cm and I don’t know how much was lost with the first surgery.

There is a lingering fear deep within me that he will lose more as they search for what is wrong and that eventually he won’t have enough left to work.  That is really my worst fear.

But I have this deep deep feeling in my heart that this is over.  I believe he is already healed, that’s why she couldn’t find anything wrong.

It sucks that already he’ll have to grow up without all that intestine that’s already been removed (plus, the surgeon said both she and the last surgeon thought he was born with an abnormally short intestine).  I wonder what nutritional hurdles we will have to overcome because of that- but one thing at a time right?

I am absolutely blown away by the amazing amount of support we received and I’m pretty sure at least 100 people were praying during his surgery!  A friend gave me a list of scripture about healing and overcoming fear and it was my comfort for the three excruciating hours we waited.  At the beginning of the surgery I was more afraid than I have ever been in my life and after three hours in scripture I was more sure than I have been in years of the promises God has made me.

I posted these verses on Facebook because they really hit home:

Joshua 1:9 “Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the LORD your God will be with you wherever you go.”

Isaiah 53: 4-5 “Surely he took up our pain and bore our suffering, yet we considered him punished by God, stricken by him, and afflicted. But he was pierced for our transgressions, he was crushed for our iniquities; the punishment that brought us peace was on him, and by his wounds we are healed.”

‎2 Tim 1:7 “For God did not give us the spirit of fear; but of power, and of love, and of a sound mind.”


These two especially:

Isaiah 54:10 ” ‘Though the mountains be shaken and the hills be removed,
yet my unfailing love for you will not be shaken nor my covenant of peace be removed,’ says the LORD, who has compassion on you.”

‎2 Tim 1:12 “That is why I am suffering as I am. Yet this is no cause for shame, because I know whom I have believed, and am convinced that he is able to guard what I have entrusted to him until that day.”


Levi is now resting deeply (on fentanyl) and recovering and even my older son Jayden is (finally) sound asleep.

Sorry for the graininess in some of the pictures below.  I didn’t want to turn the lights on in Levi’s room and wake him up so the lighting wasn’t quite good enough for my phone.

Normally he’s in the crib to the left and that is in the room but here he is in the special surgery bed.


This bed gets wheeled to the OR


The beautiful card the nurses made for Josh



And Mommy (who’s not very good at taking pictures of herself with one hand-lol)

And big brother Jayden

Who got a new pool to play in from Grandma!

A few weeks ago we took Jayden to the zoo for my birthday!

I cannot wait for this little man to come home and be with us all.

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11 Responses to Recovery

  1. Mom says:

    I can’t wait too, Amanda.

  2. Pro says:

    Absolutely adore that pic of you and Levi – too sweet 🙂 Let’s hope that your intuitions are correct and little man is healed. xoxo

  3. Becca says:

    I believe that this is over as well Amanda. Levi is healed and will be home before you know it. I can’t wait to meet him and smooch him up! What a little warrior he is!

  4. Susan says:

    Levi is the HEALED! He will be home with the family, soon. Love the scriptures. 2 Timothy 1:7 is a favorite of mine that I stand on a lot. Loved all the pictures.

  5. Andrea says:

    The picture of you holding Levi is beautiful. You look gorgeous and he looks like he is smiling because he is in his Mama’s arms. 🙂 What a journey little Levi has already been on! I am praying that his journey is mere days away from taking him home to you!

  6. Ashley says:

    What a beautiful family you have!!!

  7. Starr Gruenwald says:

    Beautiful pictures of you and your
    family and statements of your faith.
    God is merciful and and compassionate
    beyond what we could imagine
    Praying for you

  8. Noah's Dad says:

    Wow…! What hospital are you guys in where they have rooms like that!!! My wife is a pediatrician at Children’s and they sure don’t have any rooms with outside doors like that!

    Glad to see that you guys are trusting God like you are! He loves Levi even more then you guys – hard to believe, huh! Thankful that God holds the whole world in His hands….and that world includes you guys, and little Levi!

    God knows every little hair on his head…and can see into the smallest places…that even the microscopes can’t see! God’s good!


    • Amanda says:

      Hey Rick!

      We are at St. Joseph in Denver. They have 4 rooms like that “for the really sick babies”. When he was getting better they moved us out into the hall slots like everyone else to clean the room really well, but then when he got sick again they moved us back in. The nurse told me St. Jo’s is taking over the building across the street that used to be Children’s and the new NICU will have rooms like that for everyone. It’s nicer for the family to have a bit of privacy with their little one.

      You’re right. God does love him more than even we could. And only He can heal him in ways modern medicine can’t.

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